PROGRAMME TIMELINE

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08:00-18:00

Secretariat Opening Hours and Registrations

ROOM CARLO 2 (PATIENTS)

08:30 - 09:00

Amyloidosis Alliance Introduction and Actions

09:00 – 10:00 • SESSION 1 – DAILY LIFE WITH AMYLOIDOSIS
09:00 - 09:15

Physical activities in ATTR-CM: what can I do? What should I avoid ?

09:15 - 09:30

Physical activities in ATTR-PN: what can I do? What should I avoid ?

09:30 - 09:45

Digestive disorders and nutrition for ATTR patients

09:45 - 10:00

Discussion

09:30 - 09:45

Coffee Break

10:30 – 11:30 • SESSION 2 – DAILY LIFE WITH AMYLOIDOSIS
10:30 - 10:45

How to manage fatigue and pain?

10:45 - 11:00

Psychologic impact of the disease

11:00 - 11:15

How to manage multidisciplinary appointments?

11:15 - 11:30

Discussion

11:30 – 12:45 • SESSION 3 – BENEFITS OF PHYSICAL ACTIVITIES
11:30 - 11:45

Physiotherapy: when to start, which benefits and for whom?

11:45 - 12:30

Benefits of yoga: a practical session

12:30 - 12:45

Discussion

12:45 - 14:15

Lunch

14:15 - 14:30

Sponsored Symposium

14:30 – 16:00 • SESSION 4 – THE ROLE OF THE CAREGIVERS
14:30 - 14:45

Two testimonies

14:45 - 15:00

How to support caregivers?

15:00 - 15:15

The role of caregivers and their relationship with doctors

15:15 - 15:30

Professional caregivers

15:30-15:45

Psychological issues of caregivers

15:45 - 16:00

Discussion

16:00 - 16:30
Expanded

Coffee Break

16:30 – 17:45 • SESSION 5 – IMPACT OF AMYLOIDOSIS IN THE FAMILY
16:30 - 16:45

How to explain the disease in my family ( testimony)

16:45 - 17:00

Genetic counseling when and how ?

17:00 - 17:15

Controverse: benefits of early genetic test ?

17:15 - 17:30

Financial and professional impact: how to deal with it ?

17:30 - 17:45

Discussion

ROOM CARLO 1 (DOCTORS)

08:30 - 08:40

Welcome Address

08:40 - 09:00

Opening Lecture

09:00 - 09:45

Sponsored Symposium

09:45 – 10:45 • SESSION 1 – DISEASE HETEROGENEITY:
BRIDGING MOLECULAR EVIDENCE TO CLINICAL FEATURES
10:45 - 11:15

Coffee Break

11:15 – 12:30 • SESSION 2 – DIAGNOSIS AND DISEASE MONITORING OF ATTR
11:15 - 11:30

Lecture: State of the art

11:30 - 11:42

Oral presentation 1

11:42 - 11:54

Oral presentation 2

11:54 - 12:06

Oral presentation 3

12:06 - 12:18

Oral presentation 4

12:18 - 12:30

Oral presentation 5

12:18 - 12:30

Oral presentation 5

12:30 - 13:45

Lunch and Poster session

13:45 - 14:30

Sponsored Symposium

14:30 – 15:45 • SESSION 3 – TREATMENT INNOVATION
14:30 - 14:45

Lecture: State of the art

14:45 - 14:57

Oral presentation 1

14:57 - 15:09

Oral presentation 2

15:09 - 15:21

Oral presentation 3

15:21 - 15:33

Oral presentation 4

15:33 - 15:45

Oral presentation 5

15:45 - 16:15
Expanded

Coffee Break

16:15 - 17:00

Sponsored Symposium

17:00 – 18:00 • SESSION 4 –  ROUND TABLE:
GAPS IN MANAGEMENT OF ATTR IN 2025
18:15 - 19:00

Sponsored Symposium

CARLO 1 ROOM (PATIENTS AND DOCTORS)

08:00-16:00

Secretariat Opening Hours and Registrations

08:30 – 09:30 • SESSION 1 – ROUND TABLE
BASIC AND CLINICAL RESEARCH IN AMYLOID DISEASES: WHERE ARE WE GOING?
09:30 - 10:15

Sponsored Symposium

10:15 – 11:15 • SESSION 2 – CONTROVERSES: HOW WE MONITOR DISEASE PROGRESSION?
11:15 - 11:45

Coffee Break

11:45 – 12:45 • SESSION 3 SYMPTOMATIC MANAGEMENT OF ATTR AMYLOIDOSIS
12:45 - 13:45
Expanded

Lunch

13:45 - 14:30

Sponsored Symposium

14:30 – 15:50 • SESSION 4 – ROUND TABLE
HOW THE NATURAL HISTORY OF THE DISEASE IS CHANGING?
15:50 – 16:00 • CONCLUSIONS