Amyloidosis Alliance
The Amyloidosis Alliance's missions
Communication and mutual support between patient organizations
With the Amyloidosis Alliance, whether you are an association, a patient organisation somewhere in the world, by speaking out together we help each other and advance the fight against the disease worldwide.
Amyloidosis Alliance: advocacy at an international level
Through the Alliance, we share our knowledge about the disease. Together, let's make sure that awareness, diagnosis, treatment and care, but also research, advance on an international level.
One of our most important missions is also to support and encourage other countries in initiating patient organizations.
The amyloidosis alliance supports the fight against amyloidosis worldwide and accompanies patient organizations in different countries.
The Purpose of the Amyloidosis Alliance
- To raise public awareness of Amyloidosis
- To support initiative to optimize patient’s journey, access to treatment and quality of life
- To highlight unmet research program needs to cover the Amyloidosis field
- To be a key player in the Network / Create links between all the stakeholders
- To promote and lead the exchange of information between Alliance members
- To support national associations to reinforce their role and skills
- To support other countries in initiating patient groups
Find the Amyloidosis Alliance on our media platforms
https://www.amyloidosisalliance.org/
https://www.worldamyloidosisday.org/
